Reporting Back

My new OBGYN was very nice and my appointment went rather smoothly. It was an intense appointment though and he gave me a lot to think about.  He seems very concerned about my ovaries. He wants to be proactive with them and he gave me three different options to ponder. None of them really appeal to me but I will do more research and acquire more details.

• The first option is the least invasive. He wants me to start birth control pills. Now this seems like a bad idea because why would I want to add more estrogen in my body? It seems counter productive. Especially since Dr. Blackwood wanted me to be very aware of my soy consumption. And that's just estrogen in soy! He said he would put me on a low low dose of estrogen. About 10mg. I have read that women who take birth control for 5+ years lower their risk of ovarian cancer, but what if I have rogue breast cancer cells floating through my body?! I certainly don't want to feed them estrogen!
• The second option is only based on theory. I'm sorry, I love research, but I am not doing something to my body based on theory alone. That theory is that ovarian cancer does not actually start in the ovary. Some are saying that the cancer starts on the little phalanges at the end of Fallopian tubes. It then presses up against the ovary and the tumor grows in to it. Some women are having just their Fallopian tubes removed.
• The third option is removing both the ovaries and the Fallopian tubes.

Now the last two options would require that I freeze eggs or embryos and obviously consult with an IVF clinic. At this moment in time those two options seem just a bit extreme to me.

And to be honest this whole ovaries thing angers me. I'm 30! I want to have kids, but not yet. I hate that I feel pressured to have kids because my ovaries may be little ticking time bombs. I have stuff I need to do. I want to be financially stable. I don't want to rush anything just because something may or may not happen. As pointed out to me. When my mom and aunt Jeanne had their ovaries removed there was no sign of cancer, so that leaves me hopeful.

This whole little "but this isn't my plan" rant makes me think of a quote by Joseph Campbell I saw posted on a blog, "We must be willing to let go of the life we have planned, so as to have the life that is waiting for us."

For now I am waiting for test results to come back. I also need to get an ultrasound done and a couple more tests. I will see him again in six months and by then I should hopefully be well versed in ovaries and ovarian cancer.

- J.

New Doctor Time!

It's been awhile my dear blog. I do miss posting here, but no posts means nothing crazy is happening and I totally prefer that. It's not you blog, it's me!

Tomorrow I have an appointment with a new OBGYN recommended to me by my breast surgeon. She really wants to keep an eye on my ovaries. Keeping an eye on one's ovaries is difficult because it is very hard to diagnose ovarian cancer. But this new doctor is very specialized and I have the utmost confidence in him (though I haven't met him yet...). I know Dr. Blackwood wouldn't send me to just anyone.

I would be lying if I said I wasn't nervous. No, I'm not nervous because he will be my first male OBGYN (although that is strange to me). I'm nervous that he's going to find cancer.

Thanks to this whole breast cancer experience I am now that person who thinks every little pain is CANCER!! I can no longer hide behind the lame excuse of "I'm too young to get cancer." I get a headache? It's CANCER!! I get a stomach pain? It's CANCER!! My knee hurts after running? It's CANCER!! I know it's silly but I feel like that will be something that follows me around for awhile, if not forever. But it's ok, I've gotten used to it already.

So I am ready for this new doctor! I have all my reports in order and all my paperwork filled out. He is located in the same building as my plastic surgeon so I've got this! After my doctor appointment I am heading north for Thanksgiving. I am looking forward to a low key, relaxing vacation.

I hope you all have a great Thanksgiving holiday!

- J.

Hold Myself Up and Love My Scars

I learned something new today. Today is BRA Day. BRA Day you ask? Yes! Breast Reconstruction Awareness Day. It's a day to celebrate me and my new boobies! Yaaayy!

No, really. According to the website, My Hope Chest, "...nearly 6200 women a year lose their breasts and are uninsured." I couldn't even imagine. When I was going through the planning for my double mastectomy, not once did I think, maybe my reconstruction won't be covered. Reconstruction was part of my recovery and my insurance company didn't even blink an eye. I never worried once, but many women do. When uninsured or under insured women hear, "you have breast cancer," that may mean a double mastectomy with no insurance for reconstruction.

I believe every woman deserves the chance to decide if she wants reconstruction. I wish insurance did not have to be the deciding factor. There are many strong women who decide to opt out of reconstruction on their own accord. I went with reconstruction and I'm personally glad I did, though I can have mood swings over it. Sometimes when I look at my new boobs I think, maybe I shouldn't have done this because they just don't look like mine. Then other days, I look at them, scars and all, and think, fuck yeah I took matters in to my own hands and I'm proud of them!

It makes me sad to think that there are women out there who feel breast cancer has made them incomplete because their only option was a double mastectomy with no reconstruction. That's just not right. Dealing with the diagnosis of breast cancer is enough trauma. My Hope Chest is the only national organization focusing on treatment for uninsured women.

This is the Breast Reconstruction Awareness ribbon My Hope Chest has created. "The colors in the breast reconstruction ribbon transition and transform, just like the survivors My Hope Chest helps to become whole again. The ribbon goes from pink - the original breast cancer color, to white - known as the "light" or the power of healing. The white blends to yellow, the color of hope, sunshine and new beginnings."

One day, hopefully every woman will love her body and her scars, reconstructed or not. But it should always be her own decision.

- J.

Metastatic Breast Cancer Awareness Day

In the haze of pink ribbons and breast cancer awareness / prevention this October, only one day is "dedicated" to the patients whose breast cancer has metastasized to other parts of their body. Seriously? A day? Just a day? Why isn't this whole month dedicated to ALL aspects of breast cancer? Of course it's uplifting to hear the stories of women who beat breast cancer in its early stage, but let's also hear the stories of women with Stage IV breast cancer. There is NO cure for Stage IV breast cancer and boy isn't that a downer. Who wants to hear that? Well, I do. And I think everyone else should!

I have many opinions on October and this whole pink ribbon campaign now that it has directly impacted me. But I will always have a special place in my heart for the pink ribbon. My mom embraced it and it makes me think of her. Not in a sad way, I like seeing the pink ribbon! I am currently rocking her pink survivor ribbon pin this month and I am so proud of it.

I just think we all need to be a little more aware of where our donations and monies are being spent. No more donating money to charities where it goes to awareness and prevention, we get it! I want to donate to charities that are researching a cure for Stage IV patients. I want to donate to Planned Parenthood so that women who can't afford mammograms will be screened no matter what.

While you are here, I highly recommend signing this petition that is asking to change October to "National Metastatic & Breast Cancer Awareness Month." You can also help the movement here. I say let's not only recognize Metastatic Breast Cancer... what about the men who are affected by breast cancer? What are their feelings towards the pink ribbon? What about people who have other cancers? What do they feel about the pink ribbon explosion during October? This is a great article about the problem with pink. It's an interesting read!

This is my first October being a breast cancer survivor. Seeing all the pink ribbons doesn't make me think of my battle with cancer any more than say in February or August. I think about it a lot. I assume this will change as the years go by. Will I get angry when October comes around for reminding me of what I went through? I don't know. I think it will always follow me around. And that's fine.

- J.

Check Up!

Last week I had my four month check up with Dr. Spiro. I was kind of nervous about this check up because I knew we would be discussing nipple reconstruction. I made up my mind that new nips are just not for me at this time but I thought maybe he would try to talk me into them.

He did no such thing. All of my nipple excuses I thought up were for naught. When he came in to the room he examined me first and said I was healing really really well. He said my skin was reacting nicely and that my scars looked great too. No fat grafting is needed! He then went on to explain how he does nipple reconstruction (since there are many different ways). What he would do is he would pull up some of my skin on my breast to form the nipple part. Then he would take a circular patch of skin from my lower abdomen to create the areola. He would cut a hole in the patch of skin so the nipple could peek through. This would be done under local anesthesia. The nipple would have to heal for about a month and then he'd tattoo the pigment to the newly reconstructed nip. All very very intriguing in my opinion, but I'm still not interested.

He told me whenever I was ready to do it I could make an appointment. And it can be done whenever! Weeks, months, years later. Or never. Whatever I decide. The nurse then took pictures of my progression and I was done! I walked out of the office with no next appointment scheduled. A first! Now it's just up to me and my body to keep up the good healing.

My next doctor appointment is with a new obgyn. Since I am BRCA2 positive I've got to keep my eyes on my ovaries. I'll probably get yearly ultrasounds and they'll then get removed after I am done having children. Let's keep the least amount of estrogen in my body! For now I am just looking forward to only regularly scheduled doctor appointments. No more surprises, ok body?

- J.

Today is the day...

Not that I don't always blog with love... but this is with some capital letters here. Today, I Blog with Love to introduce all my readers to a very special online study. An online study with the intention to find the CAUSE of breast cancer.

A couple posts down I blogged about the Army of Women website (did any of you join?), which is a program of the Dr. Susan Love Research Foundation. Today, I am joined with many other bloggers as we all Blog with Love. As some of you may know, and some of you may not know, many breast cancer foundations use our donations for promotion and awareness campaigns. Seriously? How many more awareness campaigns do we really need? We get it. Breast cancer is here. No one is denying that fact.

Today is the day we need to take this awareness and turn it into action! Today The Health of Women Study has been launched. HOW to be short. This is an international online study for both women AND men, with or without breast cancer. This is a study that collects information about your health, your family history, your job, your diet, etc. Are you a fan of filling out questionnaires? I know I am! Periodically you will be sent questionnaires and by filling these out, it will hopefully lead researchers in the right direction to what causes breast cancer.

I feel very passionate about this organization and this cause. All of us can come together and find a cause together. THIS will lead us towards a cure, not promotion, not awareness campaigns. We have enough of that. We need this.

I am doing this for me. I am doing this for my mom. I am doing this for the women and men who die every day from breast cancer. I am doing this for the women and men who are diagnosed every day with breast cancer. The list goes on, and this is why I am participating. Why will you participate?

- J.

Tempur-Pedic Boobs

Remember last post when I mentioned that I had a red bump on my left breast where a stitch was peeking out? Well, since that post the red bump became worse. It was actually a pretty nasty pimple that formed. If you have been unlucky enough to experience pimples it was that deep, underground pimple kind of hurt. I could tell. Luckily I couldn't feel it. I began to worry that it may get infected so I did a quick Google search to see what I could find out about it (because we all know Google is the new expert medical professional of our time). I came across a lot of breast augmentation forums where women were describing my exact problem - a stitch would be peeking out from the scar line, which would then cause a pimple to form. It seemed like it happened a lot so I was less worried.

I made an appointment to have the nurse at Dr Spiro's office take a look at it and to pull out the stitch. She explained to me that some people's bodies do not dissolve all of the stitches. If this happens, your body will push out the remaining stitches and it happens around this time. So perfect! This is normal! The nurse grabbed the tiny stitch with tweezers and pulled it out. The tiny stitch was actually 6 inches long!! It was comical to see what that little stitch produced! Now my left breast is stitch free. No irritations and no more pimples! Success!

You may be wondering, what does this post title have to do with any of this?! Well, I made a new discovery. My new boobs remind me of a Tempur-Pedic mattress. They conform to what ever bumps or wrinkles are in my bra. I wore a balconette bra the other day that doesn't get much use. I was doing laundry and needed something... Anyway, it's a strange bra, it has a lot of padding and underwire. It's comfortable enough but not my favorite. I wore it all day. At the end of the day when I removed my bra, my boobs were all lumpy and weird looking because of the way they were stuffed in to the bra. It was freaky!! Cartoonish even. I freaked out for a second but then I remembered that they will return to their original shape. They are my handy dandy Tempur-Pedic boobs after all!

- J.